I knew I should not have bragged. This illness is like a teenager you praise. The praise condemns the disease to do evil.
I had a short, intense event yesterday that pulled muscles in my arms and thighs. I think even tore something in my left thigh.
Then the morning came. Starting at 1 am I knew things were going bad.
At 4 am. I took my cocktail all at once and prayed they would win.
They didn’t.
There isn’t a muscle group in my whole self that didn’t receive some damage.
I am fatigued, as you can infer from the terseness of this post.
God be with us all,
Jay C. “Jazzy_J” Theriot
Jay C. Theriot can usually be found as “Jazzy_J” on the IRC Channel #ExtremeSpasticity on Freenode.net –> see: irc://irc.freenode.net/ExtremeSpasticity You will need an IRC Client such as HexChat to connect.
Hang in there Jay. You can can beat this. Fred
I think we are. I feel better after this event than after events I have had in the past, one day out. In my case, I think prepping the muscles is everything.
Yesterday was sleep day. I’ve had some activity today, but went into a “twitch fest”. I’m doing better now.
In the past, I would take a week to recover if at all.
My big issue today is internal tremors. I can seem to get them to stop.