We are now around 380 mcg/day. The increase was yesterday morning at 7 am and I’ve already experienced a spaz attack. However, it was short lived (praise the Lord). However, I am now feeling my muscles tighten like a snare.
It is weird in that, with the increases in medication, I am now feeling more aware. It’s one in the morning and I don’t feel like sleeping. I just took a pain pill because my fingers and toes are contorting with the spasticity, but I don’t feel like sleeping. Before you say, ewwww… I have to say it is kinda funny watching your digits do things they shouldn’t. There isn’t a lot of pain associated with the digits… the pain comes mostly from the lactic acid build up.
I fear I am growing thin in my resolve. The people that are supporting me through social media can’t imagine how much their words mean to me. Today, they kept me going. I was hoping for a couple of good days following the increase. My body thought otherwise. I watched as my condition quickly deteriorated and I just wanted to stop it, but I was powerless. My wife asked me what she could do. I said “nothing.” Continue reading “Short and Sweet”