{"id":818,"date":"2018-05-23T08:52:31","date_gmt":"2018-05-23T13:52:31","guid":{"rendered":"https:\/\/journey.jayctheriot.com\/?p=818"},"modified":"2018-05-23T08:52:31","modified_gmt":"2018-05-23T13:52:31","slug":"name-change-to-include-sbma","status":"publish","type":"post","link":"https:\/\/jayscafe.net\/?p=818","title":{"rendered":"Name Change to include SBMA"},"content":{"rendered":"

My wife and I have decided to accept the obvious.\u00a0 My neurologist considers my disease a variant of Kennedy’s Disease, abbreviated as KD.\u00a0 More correctly known as Spinal-Bulbar Muscular Atrophy, it is a genetic neurological dysfunction affecting the skeletal muscles affected by the nerves contained in the region of the medula oblongata as well as spinal nerves.\u00a0 Among other resources https:\/\/www.mda.org\/disease\/spinal-bulbar-muscular-atrophy<\/a> is a good link to start with.<\/p>\n

The disease is slowly progressive and caries a host of issues.\u00a0 Although I failed the DNA test to positively identify SBMA, my neuro is confident that my affliction is a variant of SBMA.\u00a0 Additionally, he informed us that every year they add variants of DNA mutations to the SBMA test so we just may be ahead of the test development.<\/p>\n

I’ve decided to change the name of my blog to echo the path of acceptance that I am on.\u00a0 Additionally, I must note that this path is not only traveled by myself.\u00a0 I have many partners on my journey.\u00a0 My youngest daughter confided in me that she is having a massive problem seeing me like this.\u00a0 My wife is stressed beyond belief.\u00a0 My mother in law is beside herself, my mom is digesting it and the list goes on.\u00a0 Virtually, everyone I have a relationship is affected in some way.\u00a0 I haven’t felt my situation was this influential since the divorce from my first wife.<\/p>\n

My path of acceptance has not been an easy one.\u00a0 There have been many road hazards and I have lost some people along the way.\u00a0 I feel remorse for losing them as they have no way of knowing the depth of my agony and I used their ignorance as reason to exclude them from my journey. I’m not sure of how I should go about re-including them in my life, or even if it is possible.\u00a0 I still have anger I need to deal with.\u00a0 Although I feel culpable in the severance, I continue to feel justified in my actions.\u00a0 Thus, I am at an impasse with my self.<\/p>\n

I am thankful that I have disability benefits, otherwise, I would be destitute.<\/p>\n

My faith has never waned. I would claim it has increased.\u00a0 As I sought strength in Christ from the beginning, I now see that I cannot survive without him.\u00a0 I only pray that others see the strength in their own spirituality whether it be Wiccan, Muslim, Judaism, Christian or any of the host of the world religions, even science.\u00a0 You can never tell when your time will be at hand.\u00a0 All you have in the darkness is your faith in your beliefs.\u00a0 I pray it is strong enough to carry your weight.<\/p>\n

I have not completed my path of acceptance.\u00a0 I still have a motorcycle and a car that I need to accept that I will never use again and divest myself of.\u00a0 It is very difficult to give up items that brought you a great deal of joy.\u00a0 But, they are material goods, and trappings.\u00a0 Again a contradiction within myself.<\/p>\n

Thank you all for joining me to this point.\u00a0 I hope that you all continue with me for the next leg of my journey.<\/p>\n

In Christ,<\/p>\n

Jay C. Theriot<\/p>\n","protected":false},"excerpt":{"rendered":"

My wife and I have decided to accept the obvious.\u00a0 My neurologist considers my disease a variant of Kennedy’s Disease, abbreviated as KD.\u00a0 More correctly known as Spinal-Bulbar Muscular Atrophy, it is a genetic neurological dysfunction affecting the skeletal muscles affected by the nerves contained in the region of the medula oblongata as well as […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5,17],"tags":[56,57,59,60],"class_list":["post-818","post","type-post","status-publish","format-standard","hentry","category-acceptance","category-identification","tag-kd","tag-kennedys-disease","tag-sbma","tag-spinal-bulbar-muscular-atrophy"],"_links":{"self":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/818","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=818"}],"version-history":[{"count":0,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/818\/revisions"}],"wp:attachment":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=818"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=818"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=818"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}