I thought I was doing well. \u00a0I slept all night, took my meds at 5 am, then slept until 10 am. \u00a0I woke up to fresh-brewed coffee made by my daughter. \u00a0I called her an angel.<\/p>\n
Woke the wife up. \u00a0Got ready, went to church. Talked to people. \u00a0I set the recorder in action. I sat down for mass.<\/p>\n
About 1\/4 hour into the mass, I started trembling. \u00a0About 1\/2 hour into mass we had to leave because I was spasming so bad my tearducts and my sinuses had gotten into it.<\/p>\n
I thought we had crossed a bridge and were on the way down from the 2 week spastic event. \u00a0Not only are we not down. \u00a0We are at the worst level we have been at.<\/p>\n
I feel like I’ve undone 6 months of work.<\/p>\n
I’m waiting for some major meds to kick in, then I’ll be asleep until they stop working.<\/p>\n
Goodnight.<\/p>\n
In Christ,<\/p>\n
Jay<\/p>\n","protected":false},"excerpt":{"rendered":"
I thought I was doing well. \u00a0I slept all night, took my meds at 5 am, then slept until 10 am. \u00a0I woke up to fresh-brewed coffee made by my daughter. \u00a0I called her an angel. Woke the wife up. \u00a0Got ready, went to church. Talked to people. \u00a0I set the recorder in action. I […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-689","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/689","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=689"}],"version-history":[{"count":0,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/689\/revisions"}],"wp:attachment":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=689"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=689"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=689"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}