We are now around 380 mcg\/day.\u00a0 The increase was yesterday morning at 7 am and I’ve already experienced a spaz attack.\u00a0 However, it was short lived (praise the Lord).\u00a0 However, I am now feeling my muscles tighten like a snare.<\/p>\n
It is weird in that, with the increases in medication, I am now feeling more aware.\u00a0 It’s one in the morning and I don’t feel like sleeping.\u00a0 I just took a pain pill because my fingers and toes are contorting with the spasticity, but I don’t feel like sleeping.\u00a0 Before you say, ewwww… I have to say it is kinda funny watching your digits do things they shouldn’t.\u00a0 There isn’t a lot of pain associated with the digits… the pain comes mostly from the lactic acid build up.<\/p>\n
I fear I am growing thin in my resolve.\u00a0 The people that are supporting me through social media can’t imagine how much their words mean to me.\u00a0 Today, they kept me going.\u00a0 I was hoping for a couple of good days following the increase.\u00a0 My body thought otherwise.\u00a0 I watched as my condition quickly deteriorated and I just wanted to stop it, but I was powerless.\u00a0 My wife asked me what she could do.\u00a0 I said “nothing.”<\/p>\n
We are making progress.\u00a0 I feel decidedly different with this increase.\u00a0 When I am not in an event, I am considerably more mobile.\u00a0 I didn’t even have to walk with a cane, until the event started.\u00a0 Then, I went straight to the chair.\u00a0 Only now, a dozen hours later, am I walking with the cane again.\u00a0 And that was a short event compared to the last two I had, each lasting around 36 hours.<\/p>\n
TMI follows!<\/p>\n
In one of my earlier writings, I alluded to the fact that I have trouble in all necessities of life.\u00a0 This Saturday, I’m having a scan done of my bladder to see if it’s emptying properly.\u00a0 I doubt that it is.\u00a0 When the rest of my body tightens, so does the sphincter that controls the exit to my bladder.\u00a0 I take as long to urinate as normal people take to ….\u00a0 I’ve been drinking cranberry juice almost exclusively.\u00a0 I find it helps considerably.<\/p>\n
I wish I could write more.\u00a0 God knows I want to.\u00a0 But, my arms say no.<\/p>\n
Thanks for reading,<\/p>\n
Jay<\/p>\n","protected":false},"excerpt":{"rendered":"
We are now around 380 mcg\/day.\u00a0 The increase was yesterday morning at 7 am and I’ve already experienced a spaz attack.\u00a0 However, it was short lived (praise the Lord).\u00a0 However, I am now feeling my muscles tighten like a snare. It is weird in that, with the increases in medication, I am now feeling more […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-53","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/53","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=53"}],"version-history":[{"count":0,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/53\/revisions"}],"wp:attachment":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=53"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=53"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=53"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}