{"id":476,"date":"2018-02-19T14:07:16","date_gmt":"2018-02-19T20:07:16","guid":{"rendered":"https:\/\/journey.jayctheriot.com\/?p=476"},"modified":"2018-02-19T14:07:16","modified_gmt":"2018-02-19T20:07:16","slug":"2018-february-19th-im-not-demented-really","status":"publish","type":"post","link":"https:\/\/jayscafe.net\/?p=476","title":{"rendered":"2018 February 19th, I’m Not Demented…Really?!"},"content":{"rendered":"
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I was told I was not Demented.\u00a0 Hah.\u00a0 I beg to differ.<\/div>\n
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However, I was characterized as an “anomaly.” Not good when you are looking for a name.<\/span><\/div>\n<\/div>\n
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I was looking for a formal tracking method to see if we could tell if the disease is progressive and degenerative, or is it in stasis and we can rest that this is as f’d up as I will get.<\/span><\/div>\n<\/div>\n
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Without a diagnosis, no formal tracking methods can be named. However, I showed my tracking that I’m doing and it was judged that I was covering several key indicators and to keep doing it.\u00a0 Below is the headers for the data points I’m collecting:<\/span><\/p>\n

 <\/p>\n<\/div>\n<\/div>\n\n\n\n\n
Date and Time<\/th>\nFrom BP Cuff<\/th>\nFrom Pulse-Ox<\/th>\nSpasticity
\n5 is Norm<\/th>\n		Ability
\n5 is Norm<\/th>\n		Arm Pain
\n1 – 10<\/th>\n		Leg Pain 1 – 10<\/th>\nTorso Pain 1 – 5<\/th>\nSelf Evaluation<\/th>\n<\/tr>\n
Sys<\/th>\nDys<\/th>\nPulse<\/th>\nVO2<\/th>\nPulse<\/th>\nSymptoms<\/th>\nNotes<\/th>\n<\/tr>\n<\/tbody>\n<\/table>\n
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My data analysis may have preempted a stroke risk.\u00a0 Yes, the words “stroke risk” were used in our conversation.\u00a0 In my collection, I noted that I rarely hit my “normal” blood pressure systolic\/diastolic of 120\/70.\u00a0 I rarely dipped below 136\/90, and was usually in the 140s and 50s over 90-100.\u00a0 This along with my weak capillaries is not necessarily good.\u00a0 Things could go really wrong, really quickly.\u00a0 And as much as I profess my love of Christ, I’m not in a rush to visit Him at his home permanently.\u00a0 I hope He has more work for me down here.
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A medication was prescribed that will lower my spasticity as well as lower my BP.\u00a0 I’m going to take it tonight, or not. I have a meeting tomorrow morning and I need to be alive for that meeting.\u00a0 It was suggested that I start taking it on the weekend so my wife can monitor me.\u00a0 So, I will likely wait until the weekend to take it.<\/div>\n
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We did have a very productive meeting.\u00a0 Although we didn’t get everything answered, we are making progress.<\/div>\n
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One of the big things we talked about was how my wife and I were working through the events with the cocktail and the available medicines.\u00a0 The fact that my body feels charged with electricity but cannot spasm is an incredible thing.\u00a0 It means our efforts are having a positive effect.<\/div>\n
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I look at all the information that I have compiled and I am amazed at the problems that are going on in my body.\u00a0 All because my electrical system is not functioning properly.\u00a0 Very, very weird.\u00a0 Writing about it and getting on paper has proven beneficial many times over.\u00a0 The number of views of this blog as of this morning was 1714 total views.\u00a0 I know people are watching and are concerned at some level.\u00a0 Prior to blogging, being shunned by my family, I felt completely alone.\u00a0 Raw numbers don’t lie.\u00a0 Every time one of you reads an article of mine, it is incontrovertible to me that I count, albeit small, I do matter.\u00a0 My ruinous body can do what it wants.\u00a0 I will not be defeated.<\/p>\n

Today’s doctor visit was no less than the 2nd time this blog has had an impact on my treatment success.\u00a0 The first was with the Nurse in the CCU.\u00a0 God Bless her.\u00a0 She was beyond an angel.\u00a0 I’m sure there are many others, small ones.\u00a0 The obvious continuing benefit is that my thoughts and concerns are organized when I meet with my doctors.\u00a0 Additionally, the catharsis it gives me is tremendous.\u00a0 Today I was told I was at an increased level of risk for a stroke, and that I was a medical anomaly and I’m like, “another day in the life.” No skin off my nose.\u00a0 I’m just taking it in stride.<\/p>\n<\/div>\n

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Wow, just wow.<\/div>\n
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The biggest news of the day, is that my loving wife and I were having coffee on the deck when a male cardinal decided to try and get some bird seed about 4 feet away from us.\u00a0 That was incredible.\u00a0 We couldn’t get it to come back after I accidentally scared it away, but it was amazing for the fraction of a second he was near.<\/div>\n
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Creatures are beautiful.\u00a0 I feel they are Gods way of letting us know we are one of many.\u00a0 We are not alone.<\/div>\n
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In Christ,<\/div>\n
Jay C. “Jazzy_J” Theriot<\/div>\n","protected":false},"excerpt":{"rendered":"

I was told I was not Demented.\u00a0 Hah.\u00a0 I beg to differ. However, I was characterized as an “anomaly.” Not good when you are looking for a name. \u00a0 I was looking for a formal tracking method to see if we could tell if the disease is progressive and degenerative, or is it in stasis […]<\/p>\n","protected":false},"author":1,"featured_media":477,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-476","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/476","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=476"}],"version-history":[{"count":0,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/476\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/"}],"wp:attachment":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=476"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=476"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=476"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}