{"id":360,"date":"2018-01-16T09:20:19","date_gmt":"2018-01-16T15:20:19","guid":{"rendered":"https:\/\/journey.jayctheriot.com\/?p=360"},"modified":"2018-01-16T09:20:19","modified_gmt":"2018-01-16T15:20:19","slug":"2018-january-16-as-good-as-it-gets","status":"publish","type":"post","link":"https:\/\/jayscafe.net\/?p=360","title":{"rendered":"2018 January 16, As Good as It Gets"},"content":{"rendered":"<p>Sunday &amp; Monday have brought news that I needed time to process. Frankly, I&#8217;m not processing the information well, even now.<\/p>\n<p>Act I:<br \/>\nSunday morning I was doing well.\u00a0 I even recorded audio and video of the Church Service.\u00a0 My wife, daughter and I came home ate and I took a nap prior to the football game.<\/p>\n<p>My wife had to beat me up to wake me up.\u00a0 Even then, it took me a cup of coffee to regain my position in life.<\/p>\n<p>We notified my neurologist.\u00a0 He said that we have probably hit the maximum dosage of Baclofen that my body can handle with sleep apnea.\u00a0 Going forward, I must wear my CPAP even if I think I&#8217;m going to dose.\u00a0 The consequences could be grave.\u00a0 At our next office visit, I will likely have my dosage reduced which will force us to accept a hire amount of spasticity.<\/p>\n<p>The implications of that last statement mean I will be with my current limitations in perpetuity.\u00a0 Actually, it will be worse, because we need to reduce the amount of Baclofen that is treating me.<\/p>\n<p>Act II:<\/p>\n<p>To cheer me up, my wife and I decided to go and visit my mother.\u00a0 The visit is nice, but when my wife and I ride in a car together we sing&#8230;.badly&#8230;. but we sing, and talk.\u00a0 Being captive with the woman is a joy.<\/p>\n<p>I walked into my mom&#8217;s without a cane and bragged.\u00a0 I presented my latest photos of Natchitoches and things on the TV, and we sat down for coffee.\u00a0 Within a short time, I felt my legs get to feeling strange.<\/p>\n<p>We moved from the kitchen table to the livingroom.\u00a0 It became evident, that I needed help.\u00a0 I couldn&#8217;t control my legs enough to stand.\u00a0 My wife helped get to a comfortable chair in the livingroom.\u00a0 I took my oral Baclofen, because I started feeling the rigidity and lack of control set in.\u00a0 I then decided to take the Horizant because pain started.\u00a0 We began to leave.\u00a0 I couldn&#8217;t stand.\u00a0 When I put weight on my right leg, the muscle in my thigh knotted. Not cramped, it felt like it tied itself into a knot.<\/p>\n<p>I shouted an explicit word for only the 2nd time in my mother&#8217;s presence.\u00a0 She didn&#8217;t even react.\u00a0 My wife nearly had to carry me to the car.<\/p>\n<p>I didn&#8217;t sleep at home in the afternoon.\u00a0 The burning sensation on my flesh was too great.<\/p>\n<p>Lessons Learned:<\/p>\n<ol>\n<li>Attending the EpisComm 18 convention in North Carolina alone is off.<\/li>\n<li>I cannot travel out of my house without an assistant, or some recourse of action in the case that my disease temporarily wins.<\/li>\n<li>This is as good as it gets.<\/li>\n<\/ol>\n<p>God be with us all.\u00a0 With God&#8217;s strength, and will, my life will be whatever He allows me to be.<\/p>\n<p>Thanks, and God Bless,<\/p>\n<p>Jay C. Theriot<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Sunday &amp; Monday have brought news that I needed time to process. Frankly, I&#8217;m not processing the information well, even now. Act I: Sunday morning I was doing well.\u00a0 I even recorded audio and video of the Church Service.\u00a0 My wife, daughter and I came home ate and I took a nap prior to the [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[49,50,54,35],"tags":[],"class_list":["post-360","post","type-post","status-publish","format-standard","hentry","category-life","category-limitations","category-restrictions","category-understanding"],"_links":{"self":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/360","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=360"}],"version-history":[{"count":0,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/360\/revisions"}],"wp:attachment":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=360"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=360"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=360"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}