Yesterday, I ended my post with a question about whether it would be better to remand myself to a wheelchair permanently as to prolong my potential involvement in the universe. <\/p>\n\n\n\n
My wife offered a simple answer: If I leave the house, I’m in a wheelchair.<\/p>\n\n\n\n
My issues go critical in a few steps. My body routinely goes from good to nothing within minutes. The time used to be 20-30 minutes. Now, it’s minutes.<\/p>\n\n\n\n
We have learned one the keys to quality of life is management of this disorder. It doesn’t just mean taking the 23 prescriptions that today 45-55 (depending on the quality of my body) meds per day I take around the clock. But, management of physical activities.<\/p>\n\n\n\n
We have made numerous accommodations around the house for this disorder. However, those of you that know me well, know that I don’t always do what I should. With this disorder, I pay dearly when I do that. I have finally started listening to my wife, mother-in-law, daughters and pups. When they tell me I had enough, I quit. I don’t listen to everything they tell me, but when they say I have to quit, I’m learning I REALLY need to listen. Astute outside observers notice physical changes in my appearance, voice and motions along with changes in my speech patterns when things start to tank. I don’t realize it myself.<\/p>\n\n\n\n
My wife even suggested “Don’t Let Me Get Me” by P!nk to describe my stupidity. P!nk sings “I’m a hazard to myself.” Yep, that’s me. I think I would do myself a lot of good if I started listening to my loved ones. I truly believe they know me better than I know myself.<\/p>\n\n\n\n
In Christ!<\/p>\n\n\n\n
Jay C. \u201cJazzy_J\u201d Theriot
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Yesterday, I ended my post with a question about whether it would be better to remand myself to a wheelchair permanently as to prolong my potential involvement in the universe. My wife offered a simple answer: If I leave the house, I’m in a wheelchair. My issues go critical in a few steps. My body […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-1545","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/1545","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1545"}],"version-history":[{"count":0,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/1545\/revisions"}],"wp:attachment":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1545"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1545"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1545"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}