{"id":1529,"date":"2018-05-06T00:01:03","date_gmt":"2018-05-06T05:01:03","guid":{"rendered":"https:\/\/journey.jayctheriot.com\/?p=758"},"modified":"2018-05-06T00:01:03","modified_gmt":"2018-05-06T05:01:03","slug":"a-short-vacation-some-tmi-information-and-a-new-journey","status":"publish","type":"post","link":"https:\/\/jayscafe.net\/?p=1529","title":{"rendered":"A Short Vacation, Some “TMI” Information, and a New Journey"},"content":{"rendered":"

I deactivated my Journey site because I could not stand to see it anymore. \u00a0It was a reflection of me, and I could not stand to see myself anymore.<\/p>\n

Since the decision, there has been a tumult of emotion. \u00a0I have decided, in conversation with my beautiful wife, to start the Journey again. \u00a0However, with a more positive spin on it.<\/p>\n

We have learned a bit since my last post, and I could not deal with it. \u00a0I could not stand to see myself type the words on the page that ultimately would be describing myself.<\/p>\n

I do not have Kennedy’s Disease. \u00a0However, if KD (SBMA) is the first house on the block, the disease I have is one or two houses down. \u00a0I remain an enigma to my neurologist. \u00a0He is determined to give me my life back. \u00a0However, I see the doubt in his eyes. \u00a0He is a good man, but every man has limits.<\/p>\n

I’ve developed some new symptoms. \u00a0I have something similar to TIA strokes. \u00a0I’ve had about five or six of them so far. \u00a0They come and go in waves. \u00a0The symptoms are like TIAs, but longer and in waves. \u00a0The final wave resulting in a massive spasmodic event. \u00a0To say the least, they are not fun.<\/p>\n

Additionally, something I have not thoroughly shared, is my incontinence. \u00a0Not just #1, but #2, also. \u00a0It’s not consistent. \u00a0The incontinence only occurs when I\u2019m having, or on the late end of a spasmodic episode. However, I don\u2019t even feel it when it happens. I can smell it, as can everyone else. Then, I go to the bathroom, and there it is, a mess.<\/p>\n

A third symptom, is that my legs just quit without warning.<\/p>\n

Primarily for these three reasons, I have a barrage of tests next week. Five in four days. Transportation is an issue as I have grave concerns about my ability to not have a spasmodic event while I am driving.<\/p>\n

But, more disconcerting, is the bare fact that new symptoms are appearing at all. Their appearance means progressiveness. The disease is progressing. I don\u2019t think that it is progressing quickly, but it is.<\/p>\n

I had a very dear friend that passed from ALS. I am trying to schedule a sit-down with some of her closest friends that were with her in the final stages of her life. I want to see what I can learn from them.<\/p>\n

The pain of my mind far exceeds the pain in my muscles in joints. I am in counseling to deal with the deactivation of myself. My wife and youngest child are equally distressed.<\/p>\n

The way I plan on putting a positive spin on my \u201cJourney\u201d is to do two things:<\/p>\n

    \n
  1. On Wednesdays, an article detailing an accommodation or adaptation that I have made to facilitate some mundane activity of mine. I feel that this could have value to others, in that the articles may spark a bit of creativity in their lives.<\/li>\n
  2. On Fridays, an article addressing a bit of scripture or other spiritual writing and how it applies to my Journey. As much of my Journey is through spiritual chaos, I will try to make sense of it in these pages.<\/li>\n<\/ol>\n

    So, there you have it. A new page of a new book of a new Journey.<\/p>\n

    We still do not have a name, but it is evil, indeed. And, I am a soldier. Soldiers, always, soldier on.<\/p>\n

    In Christ,<\/p>\n

    Jay C. \u201cJazzy_J\u201d Theriot<\/p>\n

    PS: \u00a0You can usually find me on irc:\/\/undernet.org as “Jazzy_J” \u00a0If you still use the wonderful protocol, drop me a line.<\/p>\n","protected":false},"excerpt":{"rendered":"

    I deactivated my Journey site because I could not stand to see it anymore. \u00a0It was a reflection of me, and I could not stand to see myself anymore. Since the decision, there has been a tumult of emotion. \u00a0I have decided, in conversation with my beautiful wife, to start the Journey again. \u00a0However, with […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-1529","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/1529","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1529"}],"version-history":[{"count":0,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/1529\/revisions"}],"wp:attachment":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1529"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1529"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1529"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}