I’ve been doing a bit of reading and talking to a close friend of mine with multiple sclerosis.\u00a0 Our symptoms are so completely similar, it is overwhelming.\u00a0 Except to the degree.\u00a0 She can still function.\u00a0 Her disability is not as severe as mine.<\/p>\n
My mind is settling on calling this condition MS.\u00a0 I tell people it’s like MS, as officially, I don’t have a diagnosis.\u00a0 My wife and I have had long discussions.\u00a0 My big question is why did this come on so quickly.\u00a0 My wife informs me it didn’t.\u00a0 It slowly crept in and we weren’t smart enough to listen.\u00a0 And, then on December 17th, 2016, it became too much for me to bare.\u00a0 That was the tipping point.<\/p>\n
I don’t know my limits or abilities.\u00a0 They change minute to minute.\u00a0 If yesterday taught me anything, it was how unpredictable my situation could be.\u00a0 In less than 20 minutes I went from functional to not and writhing in pain.\u00a0 As it is now, I’m in the wheelchair with all my muscles screaming at me.\u00a0 I don’t even care about the pain level.\u00a0 I find labeling it to be trivial and counter productive.\u00a0 I hurt to the point of debilitation.\u00a0 What does a rating matter?<\/p>\n
I have isolated myself this week.\u00a0 I am tired of having to deal with humanity.\u00a0 The world seems crazy and I feel powerless external to my limited domain. You are probably reading this through a link I have automatically pushed to social media. I am seeking beauty and an internal peace.\u00a0 So to speak, I am trying to get my yin and yang in balance.\u00a0 I have changed the background on my screens to photos of nature.\u00a0 The screens are my windows to the world, and I want my world to be beautiful.<\/p>\n
We have scheduled a trip to a friends estate at the end of the week and plan on spending the weekend.\u00a0 It will be the first significant time I spend away from my safety zone in a year.\u00a0 However, this place that we are going gives me internal peace.\u00a0 The people there are amazing.\u00a0 To say I have grown to love them is an understatement.<\/p>\n
I plan on waking up and drinking coffee looking at the lake.\u00a0 Playing with dogs and cats and shooting as many photos of plants and wildlife as my contorted little body will allow.\u00a0 I have new camera equipment that I need to put through its paces.\u00a0 I have people I have not seen in over two years.\u00a0 I think the weekend will be short and filled with joy.<\/p>\n
I am building the documentation needed to go public with pro-bono web-hosting for charitable organizations and causes.\u00a0 My body has hit a snag, and I am more focused on my own misery than the words that need to be in the charters.\u00a0 I want to support organizations that find web hosting out of their reach and make it a reality for them.\u00a0 I have more than enough equipment and bandwidth to sustain these services.\u00a0 I figure I could handle 20 or so hosts.\u00a0 I just don’t know if my body will sustain me enough to get the work done.<\/p>\n
I am learning that we should enjoy life as it is given as it can change in a second.\u00a0 With this knowledge, we should embrace life and live it to its fullest every second of every hour of every day.<\/p>\n
Thanks and God Bless,<\/p>\n
Jay C. Theriot aka Twitch<\/p>\n","protected":false},"excerpt":{"rendered":"
I’ve been doing a bit of reading and talking to a close friend of mine with multiple sclerosis.\u00a0 Our symptoms are so completely similar, it is overwhelming.\u00a0 Except to the degree.\u00a0 She can still function.\u00a0 Her disability is not as severe as mine. My mind is settling on calling this condition MS.\u00a0 I tell people […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[49,50,35],"tags":[],"class_list":["post-1407","post","type-post","status-publish","format-standard","hentry","category-life","category-limitations","category-understanding"],"_links":{"self":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/1407","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1407"}],"version-history":[{"count":0,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/1407\/revisions"}],"wp:attachment":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1407"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1407"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1407"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}