It’s been a rough week since Saturday.\u00a0 Another day in the chair.\u00a0 The spasticity has been at the highest level since the reset.\u00a0 I can’t seem to shake it.\u00a0 Last time, the only thing that seemed to help was respiratory failure and a week in the hospital.\u00a0 I’m aiming for a much lest drastic solution this time.<\/p>\n
I have an appointment with my neurologist tomorrow morning.\u00a0 What I’m thinking is reinstituting either Horizant, Lorzone or both temporarily until my muscles relax and then weaning off of them again.\u00a0 Taking these drugs are likely to take me out of the game for the duration, but right now, I’m back to searching for drivers and avoiding opening metal cans.\u00a0 I don’t think it can get much lower.<\/p>\n
I’m feeling hot spots randomly throughout my body.\u00a0 They stay for a minute or so and then move to another location.\u00a0 I termed them ghosts in the past. They are like spirits just wisping across the surface of your skin.<\/p>\n
Tremors are back.\u00a0 Minor ones, but they are definitely there.<\/p>\n
Balance… hah.\u00a0 no such thing right now.\u00a0 I do fine as long as I’m upright.\u00a0 Once I start teetering, I don’t react fast enough to make a minor correction.<\/p>\n
Spasms are visiting, too.\u00a0 Not as severe to pull muscles as in the past, but they are making things like holding coffee cups a challenge.<\/p>\n
Other TMI stuff is happening.<\/p>\n
Lack of fine motor control makes typing a challenge.\u00a0 Doable, but still not as fluid as usual.\u00a0 Typing is considerably easier than holding an ink pen, a spoon, fork or knife.\u00a0 — yes feeding myself has lost its finesse.<\/p>\n
Mental clarity is difficult.\u00a0 I believe this is due to my lack of focus and the distractions my body sends me.<\/p>\n
Pain is a fairly constant 4-5.<\/p>\n
My feet turn in automatically.\u00a0 I’m talking to the doc about this.\u00a0 Sometimes it’s only one.\u00a0 Sometimes left, right or both.<\/p>\n
The amazing thing is that I’m getting offers through LinkedIn.\u00a0 It was incredibly difficult for me to get the position I had to leave because of this illness and now, people want to higher me.\u00a0 Pouring a cup of coffee is difficult for me.\u00a0 I have things I need to do, but I’m limited.\u00a0 Pain prevents me from being able to think clearly.\u00a0 Showering has returned as a traumatic event and bathing in hot salts requires someone to be there so I can get my carcass out of the tub.\u00a0 My blood relatives are reticent to even acknowledge me.<\/p>\n
The suppressed anger and frustration overwhelms me sometimes.\u00a0 I no longer watch the news.\u00a0 I can’t handle anymore problems than what I have myself.\u00a0 My religious convictions are strong, but I am weak.<\/p>\n
Ugh. I need to focus on positive.<\/p>\n
My oldest daughter has invited me to participate in the Vet’s day presentation at her school.\u00a0 I so want to be with her on that day.\u00a0 I can’t drive, so, I’m arranging transportation through a friend’s kid.<\/p>\n
Ugh is all I can say.\u00a0\u00a0 And that I need a nap.<\/p>\n
Peace, love and granola.<\/p>\n
Jay C. Theriot<\/p>\n","protected":false},"excerpt":{"rendered":"
It’s been a rough week since Saturday.\u00a0 Another day in the chair.\u00a0 The spasticity has been at the highest level since the reset.\u00a0 I can’t seem to shake it.\u00a0 Last time, the only thing that seemed to help was respiratory failure and a week in the hospital.\u00a0 I’m aiming for a much lest drastic solution […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8,46,50,54,35],"tags":[],"class_list":["post-1393","post","type-post","status-publish","format-standard","hentry","category-baseline","category-fatigue","category-limitations","category-restrictions","category-understanding"],"_links":{"self":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/1393","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1393"}],"version-history":[{"count":0,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/1393\/revisions"}],"wp:attachment":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1393"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1393"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1393"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}