From mid-day yesterday until now, there was an increase in my spasticity.\u00a0 It was so intense at some point that just touching things with my fingers hurt.\u00a0 Any move I make causes at least level 6 pain.\u00a0 I feel like I’m a “Tin Man” again.\u00a0 I’m going in to Gervais on Monday to get an increase in the ITB.\u00a0 I don’t know that anything I do makes any difference.\u00a0 I tried working out and I think that may have contributed to my situation.<\/p>\n
I need to get smart and understand my disease.\u00a0 I’m failing. It is really a quality-of-life requirement.<\/p>\n
My hands are so tight that just making a fist pops all my joints in my hand.<\/p>\n
I am handling the situation better mentally.\u00a0 I understand this is the way it is going to be and I have severe limitations.<\/p>\n
I need to position myself to where I can do things and be productive, but use voice recognition to accomplish the tasks.\u00a0 I need to do some code writing but I have a system that is working well enough to translate the spoken word into program code.\u00a0 If I could pull that off, then I could really do things with my web-site.\u00a0 *nix has a program called Simon that shows promise.\u00a0 I tried setting it up earlier, but I was in too much pain to focus enough to follow the directions.\u00a0 I think I’m going to give it a go again.<\/p>\n
Microsoft VR sucks.\u00a0 Google on my Android phone is the best.\u00a0 But, I need a desktop system.\u00a0 I can’t code on my cell.\u00a0 (An Android tablet could fit the bill, but I’m not willing to spend the dough on one that could do everything I need it to.)<\/p>\n
There are so many things I wanted to do.\u00a0 I can’t see a path to being able to physically do them anymore.\u00a0 I feel like my life is over and I’m just waiting to die.\u00a0 The irony is that at 49, I’m expected to add another 30-40 years onto that number.\u00a0 I’ve always have had a 5-year plan.\u00a0 Now, I can’t plan for later in the day.<\/p>\n
<\/p>\n","protected":false},"excerpt":{"rendered":"
From mid-day yesterday until now, there was an increase in my spasticity.\u00a0 It was so intense at some point that just touching things with my fingers hurt.\u00a0 Any move I make causes at least level 6 pain.\u00a0 I feel like I’m a “Tin Man” again.\u00a0 I’m going in to Gervais on Monday to get an […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[35],"tags":[],"class_list":["post-1387","post","type-post","status-publish","format-standard","hentry","category-understanding"],"_links":{"self":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/1387","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1387"}],"version-history":[{"count":0,"href":"https:\/\/jayscafe.net\/index.php?rest_route=\/wp\/v2\/posts\/1387\/revisions"}],"wp:attachment":[{"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1387"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1387"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jayscafe.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1387"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}