#KennedysDisease #SBMA #Success #ExtremeSpasticity, #AcceptanceWithoutSurrender
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About two months after I started taking Myetin, I regained my afferent (sensory) nerves.\u00a0 I had lost feeling over about 70% of my body, my sense of smell, taste and I was having hearing issues.\u00a0 All those have returned, although, there is no sense of “listening.”\u00a0 My lovely wife will vouch for that.<\/p>\n\n\n\n
My problem lies with the efferent (motor) nerves.\u00a0 How will I know if the Myetin is repairing those nerves?\u00a0 That is the whole point.\u00a0 Regaining function.<\/p>\n\n\n\n
With the afferent nerves, I became acutely aware when the specific nerves regained viability.\u00a0 The area would become hypersensitive. It was a funny time.\u00a0 I sometimes felt like I could literally feel people looking at me. Then, over a period of 18 – 36 hours, my brain would calibrate the response and sensory input would normalize.<\/p>\n\n\n\n
But, what metric will slap me in the face to let me know the motor neurons are coming back?\u00a0 What should I expect?<\/p>\n\n\n\n
I’m not certain, but I think I may have an answer.\u00a0 The last couple of nights, this one included, I wake from a dead sleep burning up.\u00a0 Not drenched in sweat, but just uncomfortably hot.\u00a0 I feel warm all over.<\/p>\n\n\n\n
Heat causes my muscles to violently cramp and spasm. I sleep in temperatures in the 60s to help prevent them.\u00a0 The 60s have not been low enough for the last three days.\u00a0<\/p>\n\n\n\n
I am recovering from considerably damaging my muscles last week.\u00a0 I’ve been in a chair most of the last two weeks.\u00a0 I can walk short distances, but then I pay.\u00a0 I can’t say definitively that I’ve regained function in my muscles because of the path I’ve traversed in the last couple of weeks.
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I’m not sure what is happening, but it is happening. I dream of a day when I can travel a distance to visit friends.<\/p>\n\n\n\n
In Christ,<\/p>\n\n\n\n
Jay C. \u201cJazzy_J\u201d Theriot
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