#KennedysDisease #SBMA #Success #ExtremeSpasticity #AcceptanceWithoutSurrender<\/p>\n\n\n
I have completed the design of an online QR Code driven scavenger hunt. \u00a0All that remains is the documentation. \u00a0I am getting grossly fatigued. \u00a0I am pulling out all the stops. \u00a0I am driven to get this fully completed by the Saturday. \u00a0Three days away. \u00a0I have a minuscule amount of work remaining — documentation of the game (one paragraph) and to generate the QR codes that will drive the game (very simple).<\/p>\n
I received an emotional blow yesterday. \u00a0A few days ago I was invited to a family event. \u00a0This is the first such event since I’ve been on disability, almost two years. \u00a0I was concerned at first, then cautious and finaly elated that maybe, just maybe, I was being reaccepted into the family.<\/p>\n
This came crashing down yesterday. \u00a0We were in a family text list. \u00a0I have certain members blocked because of their past callous coments. \u00a0We, the members of the family, were asked how many were we bringing and if we could bring a dish to add to the available food to the event.<\/p>\n
In my replied, I made referrence to my gang being a little late because of marching band practice and having to monitor the game until 5 pm. \u00a0The party starts at 5 pm and I live 1\/2 hour away.<\/p>\n
Having several of the others blocked, I was not aware of what was going on. \u00a0Evidently, the rhetoric became venomous and my older sister, the de facto matriarch of the family, put an end to it.<\/p>\n
I contacted her directly and asked if my presence at the family get-together would ruin the party. \u00a0In her response, I inferred, there were several members of the family that preferred I not be there. \u00a0She was not happy, nor desiring to tell me that. \u00a0Nor, was I wont to hear it.<\/p>\n
I journey on. \u00a0My immediate family has grown smaller. \u00a0I am sad, that I exist in a world that is ever-decreasing in size around me, and my family cannot see it in their hearts to reach out to me.<\/p>\n
I have asked that I not be included in future family events. \u00a0It causes too much pain for me. \u00a0I have been fighting pain on pain to produce this game for the good of others. \u00a0I seek no monetary compensation from it. \u00a0If it fields well, intellectual property and future proceeds will be given to my church.<\/p>\n
I have huge juxtapositions that are contradictory. \u00a0People, everywhere I meet, external to my siblings, have nothing but supportive, nurturing comments to offer. \u00a0My siblings reject me. I cannot reconcile the difference in opinion. \u00a0This irreconcilable schism is in large one of the motivations for me to write this blog. \u00a0Not in retribution, but so that I have a voice. \u00a0If the voice doesn’t touch those that I care most deeply for, then it will touch those whom I do not even know. \u00a0I want the public to know that having a traumatic disorder is not only medically or physically challenging, but it affects all of your being. \u00a0Your relationships, finances, mental as well as physical, all are affected by the disease.<\/p>\n
If I can’t help myself, then maybe, I can help others.<\/p>\n
In Christ,<\/p>\n\n\n
Jay C. \u201cJazzy_J\u201d Theriot
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